I normally keep my personal life private, but this post is going to give you a glimpse into some circumstances that have recently come into my sphere of experience, as well as show you a way that technology is being used in order to change the game of medical diagnoses and treatment scheduling with typical new media and transmedia flair.
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While visiting my typical Florida spot this past December over Holiday
break, I received a phone call from my Grandmother that I definitely never
wanted to receive. Her husband of 62 years, my Grandfather/Adopted Father was
diagnosed with stage 3b small cell lung cancer. A mass was discovered and was
rapidly spreading towards his lymph nodes (highways for the disease to spread
towards his brain and various other bodily locations).<<<REWIND
In June of 2012, having graduated with my Bachelor of
Science degree in early spring, I thought I should stop in and visit my
Grandparents in the Cleveland, OH area for a month or so before making my way
back to Denver, CO in order to be near my son who was about to turn 8.
GoTo: REAL-TIME
That stay, which was to be one month, has turned into eight months due to
various health issues that my elderly Grandparents/adopted parents have
exhibited…they needed me, and I have always been the type of person to help
whenever and wherever I can.
Being a Masters student, research is something that has been
programmed into my DNA over the course of my education, so upon receiving that
phone call from my Grandmother research was first on my to-do list.
As an Internet adept, this is of course the first place I
turned. In fact, when the time came for the first round of chemotherapy for my
Grandfather, the RN giving the “class” asked me how I was so knowledgeable on
the topic of cancer. My answer? Digital resources that are at everyone’s
fingertips, over a week to study up, and a sponge-like brain that tends to remember facts and
information very easily.
I found so much information online, from YouTube videos
posted by actual cancer survivors as well as family members that lost their loved
ones, lung cancer medical conference presentations from the University of Pennsylvania, Mayo Clinic resources and support
groups, and much…MUCH more.
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| Open Source Cure art |
Interestingly enough, I also found the story of a man named Salvatore Iaconesi a 39-year-old
Italian robotics engineer recently diagnosed with brain cancer. The story was doubly interesting to me due to
being a speech delivered at TEDx Transmedia 2012 in Rome, Italy. Salvatore’s
presentation, titled “My Open Source Cure”, shows how he decided to take
matters into his own hands and make his medical records public information in order to
leverage his chances for a cure to his disease while simultaneously moving away from
the impersonal systematic approach to treatment provided by the western medical community.
His unique and transparent approach to facing his disease has had staggering
results thus far that can be seen at the end of the 10-minute presentation (I
STRONGLY encourage you to take the time to listen).
Until next time,
~Chris, out


